When you are a parent of a child with severe disabilities, you have to accept the fact that your life journey is going to be much different than most people’s and that you are not in control of circumstances.  Those two truths are much easier said than lived-out, but they are crucial to living well.

Same Lake, Different Boat is a book that puts the right words to so many truths that I have learned in that past eleven years since my daughter’s birth.  A reviewer, with whom I agree, says of Stephanie Hubach’s book: “Concisely written, personal in tone, she provides a solid basis for tearing down judgmental barriers and building effective communities among people with different needs. A must read for anyone interested in learning about loving and caring for “normal people in an abnormal world.“

Here are my favorite parts:

Much of our 21st century life is organized around denying the reality of life’s difficulties. We can surround ourselves with material comforts that give us the false sense of security that, maybe, life is not so difficult after all. We can create an illusion of control that, perhaps, we really are the masters of our own destiny. However, when the reality of disability strikes, neither a thousand trips to Wal-Mart nor unlimited funds in a retirement account can insulate the blow. When disability strikes a family, it is the startling splash-of-a-bucket-of-cold-water-in-the-face that reminds us that, indeed, life is difficult.  And we are not in control. (Hubach 99)

Whether we recognize it or not, we all have implicit expectations about our future that reside in our minds. Read the rest of this entry »