Our family is in crisis. It’s not the first time, and it won’t be the last.
Three weeks ago, our severely disabled 13-year-old daughter, Kathryn, had a full spinal fusion surgery. According to the “pain team” of anesthesiologists and neurologists, it is the second most painful surgery to recover from. (It’s second only to a certain kind of chest surgery.) So, we have been dealing with a lot of crying, screaming, tears, flailing arms, beeping machines, doctors, nurses, specialists, sleepless nights, and hospital meals – just to list a few of the trials of the last month. It’s been a hell of a month.
To add to the complications, both my wife and I have been dealing with health problems of our own that manifested in the week before the big surgery. Julie earned herself a hernia in her abdomen, which was surgically removed three days before our daughter’s surgery. She is not allowed to lift anything for several weeks, which is pretty challenging for the mother of a disabled girl. In addition, I earned myself an ailment called Meniere’s Disease, which landed me flat on my back on two occasions with two-hours of nasty vertigo – both episodes were during the week of Kathryn’s surgery.
Fortunately, we have a good support system made of our family, friends, and medical community. Continue reading “Living in Crisis”